Navigating life and trying to stay creative with Fibromyalgia, Bi-Polar 2, Adrenal fatigue and CFS. There is also a touch of Hyperacusis, Misophonia, Hypothyroid, Pulsatile Tinnitus, Asthma and everything that comes along with it. Trying to heal my body with organic food, supplements,and modified exercise.
Thursday, October 27, 2011
vitamin supplements
I have been hearing a lot about vitamin supplements and manuka honey (25) lately bringing some relief to many Fibro sufferers.. I am contemplating switching from meds to vitamins..will continue this thought with you later, back hurts a lot today and this is almost impossible.
Wednesday, October 26, 2011
Music and mood
I have discovered in the past that music is a great mood enhancer. It can make you cry even when you didn't think you were sad. It can make you want to dance when you thought you would never get up off the couch, and it can make you think you are stronger than you thought, that whatever is happening now may not be so bad. That you can get over it. You may be ok when you come out the other end of this bumpy un-mapped road. Find what makes you happy. Find what makes you move and get it all together on one cd or one playlist on the ipod, and use it. Use it like a pill. Listen whenever you want to do nothing..let the music guide you. Even if it is just a good cry, get it out. Its cheaper and better for you than a hundred others you may chose to do instead.
Ideas for managing your mood
some of this is helpful, some is not. Pick and choose as you see fit!
http://www.findingoptimism.com/mood-chart.html
http://www.findingoptimism.com/mood-chart.html
Rain vs Pain
What is it exactly about the rain that causes so much pain for people with with Fybromyalgia, arthritis, depression, and other illness? Lack of sun and cold is easy, but rain? Water is a gift of the gods, we are mostly composed of water, we need to drink water to survive. The planet thrives and grown and reproduces because of it. So why does it wreak havoc on us so? I guess that is the question of day.
Tuesday, October 25, 2011
Struggling with my enemy
I am a victim of my own persecution. I am trying so hard to be like everybody else, knowing it can never happen. I am trying so hard to push through the pain, knowing it will never get any easier. I am dealing with the fact that my body is no longer the same friend to me as it was 7 years ago, but it is slow. I lie. So I guess that means I'm a liar. I lie everyday and say "good how are you" when asked how I'm feeling. Still wanting to be like others. Reading a book written by a Buddhist to find some peace of mind in an otherwise peace-less body. Today I can do what I can at a pace that is comfortable for me and that is all I can do for today.
Question for today
When do you decide the pain is too great and just lay around all day, or to just push yourself through it no matter it is? How does this make you feel? For me that's almost everyday. I have kids! Laying around to nurse my wounds is not an option.
- Stick to a sleep schedule. If you go to bed at the same time every night, your body will get used to falling asleep at that time. So choose a time and stay with it, even on weekends
- Keep it cool. When a room is too warm, people wake up more often and sleep less deeply. According to the National Sleep Foundation, studies show that you're likely to sleep better in a room that's on the cool side. So try turning down the thermostat and/or keeping a fan on hand
- As evening approaches, cut out the caffeine. Caffeine has a wake-up effect that lasts. It's best to avoid it well before bedtime. That includes not just coffee, but also tea, colas, and/or chocolate
- Avoid alcohol before bed. That “nightcap” may make you sleepy at first. But as your blood alcohol levels drop, it has the opposite effect. You may find yourself wide awake
- Exercise in the afternoon. Afternoon exercise may help you sleep more deeply. But exercising before bedtime can make it harder to fall asleep
- Nap if you need to, but be brief. If you're so tired that you must take a nap, set the alarm for 20 minutes. Snooze any longer and you may have trouble falling asleep at night
- Make your room a relaxing refuge. Treat yourself to comfortable bedclothes and snuggly pajamas. A white-noise machine or fan may help you fall asleep to a soothing background sound
- Develop a relaxing bedtime routine. Reading helps some people fall asleep. So does listening to soft music. Do whatever works for you. But try to follow the same routine every night to signal your body that it's time for sleep
Monday, October 24, 2011
Something helpful
http://www.supportgroups.com/
http://www.butyoudontlooksick.com/
please feel free to share some more
http://www.butyoudontlooksick.com/
please feel free to share some more
Some non medical treatments
Treatments for depression that do not involve prescription medication:
1.a light box is a small light usually on a stand for table top use, that emits a 10,000 LUX of Natural 2.Spectrum® Daylight to combat the effects of depression.
3. Vitamin D
4.Medical Biomagnetism-balances the ph in the body
5. EMG-biofeedback training
6.Aerobic fitness
7. 7+ hrs sleep
8.Transcutaneous nerve stimulation
9.Massage
10.Hypnosis
11.Acupuncture
12.Interferential current stimulation
If anyone has tried any of these please share your story!
1.a light box is a small light usually on a stand for table top use, that emits a 10,000 LUX of Natural 2.Spectrum® Daylight to combat the effects of depression.
3. Vitamin D
4.Medical Biomagnetism-balances the ph in the body
5. EMG-biofeedback training
6.Aerobic fitness
7. 7+ hrs sleep
8.Transcutaneous nerve stimulation
9.Massage
10.Hypnosis
11.Acupuncture
12.Interferential current stimulation
If anyone has tried any of these please share your story!
Bad Day
So here I am struggling over my foolish decision to run a 5k this weekend knowing my body was not going to cooperate with me. Now the added stress is crippling me even further. Just because you look fine on the outside does not mean you are on the inside. Looking up the latest news on Fybromyalgia treatments and posting back my findings. I am open to any new information someone might have as well.
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