Don't Worry Be Happy!

Sounds easy when its in a song right? Harder to practice in real life. But you can. You can practice and you can be happy. Not every minute. Its real life for crying out loud..but more than you are now!
Okay this is my speech for the day because I am just so moved to do so..I posted this last night on a couple of my pages, and got little response.

" It is important to remember that your own thoughts and beliefs do manifest themselves physically, and can affect your overall health and mood. 

Start changing your mentality today by starting your day off with positive imagery. 

You can also ponder on the many ways in which you can use your own gifts and talents each day to better the world and create the change you would like to see in your daily life."    

This is true. Like being nervous can cause you to sweat or have to pee! Like getting embarrassed can cause you to blush! The chemical makeup of happy tears are DIFFERENT than tears of sadness! The list can go on..you get the point. There are proven physical reactions to your emotions. 

That reminded me (even though I don't like to make generalizations), it is in fact true, that there are majorities of people in the general populous that act or think a certain way. I have to say not a lot of people are PRO active.This is not for the people who are very engaged in their health and stay informed educated and try everything they possibly can. There are those of us who do EVERYTHING and then some. Kudos to you all!! But there are those who are NOT.  Those who are in real true pain, so bad they can barely function. And do nothing about it. Those are the ones who make me very extremely sad for their future, because they dont even think they  have one. They have lost hope and  are too tired to do anything except breathe.

 They are REactive. And so often I hear "I cant, it hurts, you have no idea..." And I get it. I of all people get it. But you have to be proactive if you want to have success. Especially us with illness. Quit smoking, skip that soda, don't let people get you angry, learn to let it go and take your emotional and mental health into just as much consideration as you would a child who fell off a bike.If it hurts don't give up just do less, do it more slowly or less often, but it will ALWAYS hurt if you don't try at all. Do you need those oreos?  Do you have to get revenge? Do you have to turn your stomach over things you cannot control? Not really. Just realize for everything you do there is a consequence. Weather its an extra 3 pounds, a flare, prolonging an argument with someone, stiff neck or a missed appointment and now you have fee's that you cant afford to pay...there are physical reactions in your body and you need to do whats best for your body. Make the best decision for you and be happy with it. Use your ability for independent thinking and use those emotions to better yourself. Don't take on the negative energy from those around you. Release it back to them.YOU HAVE TO. you owe it to yourself. So walk 5 minutes, stop sucking down the diet soda by gallon, read about emotional healing, take a yoga class, empower yourself to get a new doctor, make that call you have dreading to make, forgive yourself and don't expect perfection, ......DO WHAT EVER it take s to move FORWARD! DO NOT GET STUCK!! YOU ARE NOT YOUR ILLNESS!! YOU ARE SO MUCH MORE!!

Latest Breakthrough in the cause of Fibromyalgia? I hope so!!

This has been all the buzz lately. I know we are tired of hearing about how there is always a breakthrough, new study or new research. We hope, we wait, we read, we educate ourselves and most importantly, we get our hopes up.This new one is promising. I would like this to be replicated in a number of studies in a number of different countries so we can see all the results across the board BUT I will say that it looks promising. It makes sense to me that if touch, through the hands as well as other area of the body can reduce and some times eliminate pain (the most popular examples of this are of course massage and acupressure), it is therefore pretty logical that same pathways, rather the disruption of the pathways, can create pain. And not just in the hands because there are plenty of us who have no issues with our hands, or very few compared to whats going on the rest of our bodies.

The idea being that the idea is that there are an excessive amounts of a type of nerve fiber (AV shunts) in patients with Fibro. More than a person without. That the blood flow is being mismanaged by the blood vessel endings contributing to our conscious sense of touch and pain. In a nut shell.
I am hopeful there will be further advances with this finding and a comprehensive treatment plan can begin the be developed because we are all suffering while we wait.

 Of course now there will also be the ability to weed out who has fibro and has been misdiagnosed and although there will be some frustration in having been treating your symptoms as if they were fibro when it really wasn't..in the end it's better to find out for sure and have a true diagnosis and be able to move forward. I am hoping that we can have some great results with something a small and cost effective as hand massage or hand reflexology instead of lengthy expensive testing, biopsies and the like. Well, one can hope can't she?

http://www.albany.edu/news/39664.php
http://guardianlv.com/2013/06/fibromyalgia-mystery-finally-solved/

Living life with Aspergers and Fibromyalgia: My Autestimony By Matthew D.

Living life with Aspergers and Fibromyalgia: My Autestimony: This page is a work in progress, so bear with me as I begin scoping out my life, and how I came to know that I had Aspergers and how I am le...

God didn't give me Fibromyalgia

"God doesn't give you more than you can handle"

I just saw one person post this to another person who was sharing some bad news of new diagnosis'.
Although it is a standard and sincere response to bad or overwhelming news, I think it's not true. In fact there are plenty of people who can't handle it and end up on heavy meds, committing suicide, divorcing and isolating friends and family, lose their job and have no money for medical bills and become crippled by illness or trauma,  and yes, some just go crazy. Some people really go crazy. And that is life.

You hope you are strong enough, you hope there is a reason, and you have faith that you will survive, come out stronger and even maybe learn something. So to say "God doesn't give you more than you can handle"  I think is not something I personally want to hear.
Tell me please that you think I am strong enough to get through it.
Tell me you think I am smart enough to figure something out. Tell me you think I am determined enough to find a better way                            and maybe teach somebody else something useful along the way. Ask me exactly what I want to hear from you that will help, and then say that. 

Because I do believe in God, but I do not believe he gave me Fibromyalgia

Boston bombings=Boston Strong

I did not want to join the millions blogging and posting about the Boston marathon bombings. I still don't so I will keep this brief.

I found this and was immediately teary eyed because someone was able to put into words what I have been feeling for a week. Looking for motivational quotes for Facebook pages led me to this...who knew I'd be compelled to post about something so tragic..but I have to tell you a little about what has been going on. We know how severe pain can be all because of stress. I am a huge example of that, time has shown my body refuses to move if I can't control my stress level. No if and's or but's about it. Stress can cripple someone without fibro!
Anyway to my point... I am from Boston, and a runner when my body allows. Although I was safe and sound at home having turned down an invite to go watch (thankfully!) the bombing left me stressed and distressed in a way I have not felt since 9-11. I have had a lot on my plate, emotionally, physically, and mentally. This attack added an additional struggle for me intellectually and morally. How, why, and also  trying to explain it to my kids in a way that did not scare them...it was shutting me down. I was tired, sad, hurting, alienated friends, dismissed my husband, took no supplements, ate crap food, had trouble sleeping, and even housework fell by the wayside because I simply could focus and get myself together. The relief I feel with the capture is like 100 pounds lifted off my shoulders.
Although I have much to complain about, I have more to be thankful for and my pain seems bearable compared to those directly effected. I cannot imagine, nor even pretend to, what those families and victims are going through. How long it takes to pick the pieces up and move forward. But I cannot dwell on it for fear of crying in bed everyday. Having empathy is supposed to be a great and admirable human quality but sometimes it causes pain too great.

 To hurt so badly for a person you may never even meet, for your city, and for a family, is both a blessing and a curse.